T had her appointment today and her platelet counts went down again, but not as drastic as last time. The doctor jumped her dose up to a big dose (READ: Side effects include MASSIVE body hair growth, which is AWESOME since she is 1. A FIFTEEN YEAR OLD GIRL! 2. IN HIGH SCHOOL!!!!!!Isn't High school hard enough without having to deal with this lovely problem?)
I am so frustrated right now. Also, she is scheduled for a bone marrow biopsy next week. Do you understand me???? We were this close! this close to being done. I am trusting God, but man, am I frustrated. The doctor read new research from Italy (since this disorder is so rare). She is encouraged that this will work better. I don't really know what to think right now. I am so very frustrated (I know I keep using that word). It would be such a blessing if we didn't have to worry about this anymore. We pray for a life-long remission for our daughter. She wants so desperately to be "normal". Who doesn't want health and happiness for their children? Aren't mommies supposed to be able to make everything better? Please, Lord. Speak to me! I am desperate for you.
Wednesday, January 21, 2009
Friday, January 16, 2009
Scripture Card #2, January 15, 2009
"In the multitude of my anxieties within me, Your comforts delight my soul" Psalm 94:19
Sunday, January 4, 2009
Here we go again!
Tomorrow starts a new quarter for nursing school. (My second-to-the-last!) I pray that I can remember that I am a Christian first, a wife and mother second, and a nursing student THIRD. My priorities have been messed up in the past. Nursing school in itself stresses me out, but when I put it before everything else in my life, it overwhelms me! I am hopeful that I can keep my 2009 resolutions:
1. Memorize 2 scriptures per month
2. Relax more
3. Stress less (my POOR family)
4. Complain less (I'm just telling you, my POOR family)
5. Point to Jesus more! (I am flat-out disappointed in my behavior sometimes).
6. Lose the weight that I've gained since nursing school began! (Hense, the new "Flat-Belly Diet" book that I bought with some Christmas money). Because, you know, we have a Hawaii trip planned for June, LORD willing.
So far, so good on that one. The book is easy to follow, and I'm not starving. HOWEVER, school starts tomorrow, and I am definitely a stress-eater!
Tay has a doctor's appointment on the 21st, and I am just giving it to the Lord. He knows her innermost being. She looks like she feels good, and she has had some bumps from softball that have not left horrible bruises, so I am hopeful...
1. Memorize 2 scriptures per month
2. Relax more
3. Stress less (my POOR family)
4. Complain less (I'm just telling you, my POOR family)
5. Point to Jesus more! (I am flat-out disappointed in my behavior sometimes).
6. Lose the weight that I've gained since nursing school began! (Hense, the new "Flat-Belly Diet" book that I bought with some Christmas money). Because, you know, we have a Hawaii trip planned for June, LORD willing.
So far, so good on that one. The book is easy to follow, and I'm not starving. HOWEVER, school starts tomorrow, and I am definitely a stress-eater!
Tay has a doctor's appointment on the 21st, and I am just giving it to the Lord. He knows her innermost being. She looks like she feels good, and she has had some bumps from softball that have not left horrible bruises, so I am hopeful...
Friday, January 2, 2009
Scripture Card Jan. 1 2009
For 2009, I have commited to memorize 2 scriptures a month with the LMP blog (Beth Moore's blog) Here is my first one:
He is your constant source of stability; He abundantly provides safety and great wisdom; He gives all this to those who fear Him." Isaiah 33:6 NET
I need to remember that the LORD is my source of stability! I need HIM SO BADLY!
It is so hard to be the mother of an ill child and wanting so much to rely on the doctors and medicines, but ultimately knowing that the LORD is the one who heals according to His will. Of course, I want her healed immediately, yet it's been four and a half years. Some days I give up hope almost. I try to remember that He is never late and it's my job to be a prisoner of hope...
Lord, I am not forgetting that You love her even more than I do. Please don't forget us down here! I am weak. Forgive me for my unbelief. I can't do this without you, My Precious Savior!
He is your constant source of stability; He abundantly provides safety and great wisdom; He gives all this to those who fear Him." Isaiah 33:6 NET
I need to remember that the LORD is my source of stability! I need HIM SO BADLY!
It is so hard to be the mother of an ill child and wanting so much to rely on the doctors and medicines, but ultimately knowing that the LORD is the one who heals according to His will. Of course, I want her healed immediately, yet it's been four and a half years. Some days I give up hope almost. I try to remember that He is never late and it's my job to be a prisoner of hope...
Lord, I am not forgetting that You love her even more than I do. Please don't forget us down here! I am weak. Forgive me for my unbelief. I can't do this without you, My Precious Savior!
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